Ron and I went to our appointment with Dr. Edwards today and speaking for myself, I was a bit anxious. Our news could truly go either way. Cancer has a mind of its own. However, the bone marrow biopsy came back zero, meaning I am in complete remission. Yes, when I told my mom I cried. I had to ask Dr. Edwards to say it again because I just couldn't believe it. I think I was afraid to believe it. God has been so good to us throughout this whole journey. I am so glad He does not show us everything He is going to do. I, for one, could not take it. So, now I wait for my hair to grow back completely. I think I am going to go for the "Jamie Lee Curtis" look.....gray and all.
So, they will follow me for the next year with blood work every 9-10 weeks and I will keep taking my anti fungal and antibiotic for another month or two and all my vaccinations in April.
Thank you for praying for us so faithfully. Please continue as I am still healing from back surgery which, I think, has taken longer than I wanted due to the stem cell transplant. My energy is getting better all the time, but I still get tired in body before I get tired in mind.
I was speaking with a fellow "stem cell transplant" patient about recovering from all this and wondering when you know if this is as good as it gets, or will it just take more time. Having pins and rods in my back from T7-T12 is a lot of hardware. When will it feel "normal" and not like hardware? The answer is, I don't know, and may never know. But, I am so grateful to be walking and cancer free and allowed to be here on this earth;to be with my husband, kids and family for a while longer. Life is so precious and we take it for granted. I have even thought that God has left me on this earth to do simple things like ride my bike behind my son and encourage him as he takes turns, slowly, and doesn't fall, help my daughter sign up for her first college classes, swim in the pool and just talk with my oldest daughter, and help my youngest daughter find dance classes that teach her how to express herself through artful worship. Maybe life is lots of little things: loving my husband by just being here, being me and being his wife and my kids' mother and my parent's daughter and brothers' sister. I pray I will take more stock of the little things life has to offer and not just look at the big things as things of worth.
I pray your life takes on special meaning for YOU and you realize how much God loves you and how YOU are a part of HIS plan, even when we don't like HIS plan. It will always be for our good and HIS glory.
Love you all and keep praying,
Jenny