We begin round two of the Revlimid today along with the steroid and aspirin. No bad side effects so far. We found out the elevated calcium last time was due to the Multiple Myeloma, not the Revlimid. Dr. Hadjenberg says I am doing very well.
What I did NOT realize is that I will be doing four rounds of the Revlimid, not three and he is anticipating an aggressive chemo after that. I asked him if it was probable that I would do the aggressive chemo round, loosing my hair and all that, and he said yes. This was a bit of news I had not anticipated. So, after round four of the Revlimid, I will get evaluated for the aggressive chemo.
He wants to see my physical therapy much improved ( don't we all) before he changes any treatment. The numbness in my legs is about the same, though I walk unassisted unless I go out. I use the cane more for self protection than for balance. The brace has been able to come off for a week and that is also a blessing. However, I have to ease into being without it 100%. When my back gets fatigued or achey, I put it back on. That will be the standard operating procedure I suppose until I can totally do without it.
The physical therapist I see once a month says our goal for this month is to be brace and cane free by my next appointment the beginning of September. No new exercises, just doing them now without the brace or cane.
Thanks for all the prayers. Ron is a rock, though I cannot say the same for me. That must be why he is a rock, so he can be my rock to lean on. Pray for him as well. I think sometimes the job of the caregiver is harder than the patient.
12 comments:
Jenny, Cool blog! This will be so helpful in keeping everyone up to date.
Most importantly, I'm sorry to hear that you will be needed chemo on top of this chemo drug you are taking! I was thinking the Revlimid was an "instead of chemo" rather than an "addition to chemo". I'll be praying that you will have an easy time of this series of Revlimid and just take your treatment one at a time and not look too far into the future. We know God already knows that and is ready to carry you through it.
Prayers and love, Lisa
Wow...nice blog! I miss seeing my friend - Jenny! How do Saturday's work for you? Or Wed. the 27th? We are almost done with our project...lol..Love ya, Darla
Hey Sis,
I am so sorry to hear about the "additional Chemo". Walk strong in faith and lean on Him. He will never fail you.
I suggest you talk with Cookie about the nuances you might encounter from the "regular" Chemo. You are in my prayers every day (and those in the middle of the night). Love you, Chris
Hey Sis,
I am so sorry to hear about the "additional Chemo". Walk strong in faith and lean on Him. He will never fail you.
I suggest you talk with Cookie about the nuances you might encounter from the "regular" Chemo. You are in my prayers every day (and those in the middle of the night). Love you, Chris
Jenny,
It was good to see you at the parent meeting last week. You are in my thoughts & prayers. Hang in there!
Love,
Kris
Hey Jenny--what a neat way to keep us informed. Even though we have been incredibly busy, we have not forgotten to remember you and Ron in our prayers. You certainly have some more hurdles to jump, but oh how big our God is; He will pick you up and carry you over each one of them. We thank God that He has brought you so far. Please don't hesitate to call us if you all need anything. We love you, Ron, and the girls! Keep the faith!!!
Talk to you soon,
Phyllis Smith
Jen, I'm so sorry for the hard news. It is easy to falter when your health is involved. I sure don't mean falter as in lack of faith...I mean to just be so weary of the struggle. It is just so tiring to not feel like yourself. I will keep praying. Many blessings and before I forget...Happy almost your birthday, friend! Love you.
Hi Jenny,
thanks for putting up the blog. We are sorry about the news you didn't expect - you are doing so well and you light the way to the Source of your hope.
You're right - Ron is a rock and we love you both. Keep on keepin' on. God is amazing!
Dear great PiD inventor and greatest PiD supporter! I tried to leave a message a moment ago but it was "lost." I pray frequently, and like Chris, at odd times (night being one of them) with the promise of James 5:16 in mind and with the "righteous" requirement as my preparation: "The prayer of a righteous man is powerful and effective." Love you! PiD
Did you get my last comment?
Wobbet
Jen, I don't know what I'm doing wrong but have sent two most inspirational messages to you,only to find that they didn't go through ! So....Know I did that and rest assured we love you and are praying for you.
Wobbit
Now I know what I did wrong !!!
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