Happy Easter to you all. I am doing very well. All my blood work is going well, numbers are up, so that is just like we want it. I can't tell you how good it is to be home. We figured out that 100 days after transplant is July 4th. What an Independence Day we are going to have. I am hoping for the trifusion catheter (port) to come out the first week of May. If my blood work continues on its present course, that should be feasible. The only side effect I am continuing to experience is a bit of nausea and fatigue. Friday I was so fatigued it was hard to write and hold the phone. Can you imagine being so tired? But, Saturday was much better and today is also better. The nurse told me I should expect that because I've been through a lot and my body has to recover. I guess I do forget because I truly don't feel bad. Once my hair grows back I will be one happy camper. I told Ron I feel like an old lady with my medicine boxes filled with pills for Sunday through Saturday and I have one for morning and evening!!! Ron fills them every Sunday so I am set for the week.
We go to the doctor's office Monday and Thursday next week and then I hope it will go to once a week instead of twice. If I go out, I must wear a mask, so, the only place I go is to the doctor's office. That is supposed to be for only two weeks, so we will see what the next week brings. Hopefully I will be allowed to go out a bit more. I just don't want to push it. Infection would be a very bad thing at this point. However, I hope to be at church next Sunday.
Thank you for all your cards and prayers and words of encouragement. Keep it up!!!
Jenny Goins lives in Orlando Fl and has been diagnosed with Stage 1 Multiple Myeloma. Her diagnosis was in May of 2008. Since that time she was given Revlimid, Dex, Doxil, Velcade, among others, and that brought her count down to almost zero. So in April of 2009, she had a stem cell transplant. At this time (2011) she is only showing an M spike of .3 and holding steady.
Sunday, April 12, 2009
Sunday, April 5, 2009
Thank you to all who prayed. I get to go home tomorrow because my counts are where they need to be. I also found out that I will be on antifungal, antivirul, and antibiotic for six months. I had no idea. The port should come out in the next 2-3 weeks and I am a very happy camper about that. I will also have to get all my "baby" shots again after a year. So, I can't say enough to all who have prayed and visited and encouraged me during my two week stay here. Ron is very happy too. We're on the count down now!!!
Saturday, April 4, 2009
White Count
O.K. NOW is the time to pray specifically. My white count needs to go up so I can go home Monday. I have psyched myself up for two more sleeps and that will be Monday!!! My white count is now 0.1 and it has to move up. I am told that once they start going up, they go very quickly. Fast. I like fast. So, you guys pray out there!!!!
I am feeling fine. No fevers or infections and the nausea is all but gone. So, I am sitting here not feeling sick, but knowing that my blood work says it's dangerous to go home without any immunity building.
I am blessed to have had such an easy time of it. Thank you for making that possible through your prayers.
I am feeling fine. No fevers or infections and the nausea is all but gone. So, I am sitting here not feeling sick, but knowing that my blood work says it's dangerous to go home without any immunity building.
I am blessed to have had such an easy time of it. Thank you for making that possible through your prayers.
Wednesday, April 1, 2009
Here comes another update. It is now April 1st; day +6. No mouth sores yet, no fevers or infections. My counts went low enough to recieve the blood transfusion this morning. Now we watch for any signs of infection. This, they tell me, is the critical time. So, pray for today, tomorrow and Friday for no infection or fevers. They have procedures and meds to handle each situation that may come, and most will not hinder my going home on Monday. But, I have done really well so far and I'm praying that will continue. My nausea has been reduced significantly, and for that I am SO grateful. I am enjoying TV Land online to help pass the time.
The kids are doing fantastic; Anna even got a friend to color her hair......just a bit lighter, no drama.......I hope. I could only see it from the web cam so far.
Pray for Katherine as she takes the ACT on Saturday morning. This will be her second time and we will probably register her for it in June for her final try. A certain score enables her to be eligble for scholarship money for college.
Ron is getting tired. Juggling the kids and appointments and work and fixing the pool and visiting me and bringing me clean clothes and.......well, you get the picture. He never complains. I could learn from that!
Thanks for the prayers.....please keep them up.
The kids are doing fantastic; Anna even got a friend to color her hair......just a bit lighter, no drama.......I hope. I could only see it from the web cam so far.
Pray for Katherine as she takes the ACT on Saturday morning. This will be her second time and we will probably register her for it in June for her final try. A certain score enables her to be eligble for scholarship money for college.
Ron is getting tired. Juggling the kids and appointments and work and fixing the pool and visiting me and bringing me clean clothes and.......well, you get the picture. He never complains. I could learn from that!
Thanks for the prayers.....please keep them up.
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